Have you heard the saying that red-heads have a “fireball” personality? Well, it’s no different for Jordan. Jordan is a fun-loving, energetic, red-headed teenage fireball “…that keeps us on our toes,” shares her mom, Tanya.
Jordan has been diagnosed with Refractory Epilepsy, Congenital Hydrocephalus, and falls under the Autistic Spectrum. Even though she is non-verbal, she has her own way of expressing herself and what her needs are.
After going into status, a seizure that would not stop, and a 5-month hospital stay in 2016, Jordan would have to learn everything all over again. Before going into status, Jordan was able to eat and drink, walk without assistance, sit down on the floor and play with her toys and then get back-up without assistance. Jordan wasn't dependent on a wheelchair before going into status and she used her left arm prior to a surgery she had to have. After going into status she would require inpatient rehab, including physical therapy, occupational therapy, and speech therapy to get her back to her baseline. When Jordan started at Special Kids in the fall of 2016, she was dependent on a wheelchair and not strong enough to do much on her own.
Jordan now receives physical, occupational, and speech therapies at Special Kids. She is also part of the Special Kids nursing program where she receives care throughout the day. Since starting at Special Kids, “Jordan is now to the point where she can stand on her own. She is able to walk with assistance. She has gained stamina and is able to do more by herself. And she has also started to work on using a communication device to express her wants and needs,” reports her parents.
Jordan’s parents lastly share, “Special Kids is a loving place where we believe the care for Jordan is the same we would give. Jordan loves going there every day, and we know that everyone there loves Jordan as much as we do. They have made things better for Jordan, and they all are super-friendly and respectful to our entire family. They all take the time to know us, as well as Jordan. With everything that Jordan has been through, it is reassuring to us to know Jordan is taken care of with no worries when she is there.”